St. Jude Patient Stories: Maelin
When Maelin’s parents brought her home from China in 2017, they knew she had medical needs. It was because she was scheduled for orthopedic surgery within weeks of her adoption that her Fanconi anemia came to light. People with Fanconi anemia, a very rare blood disease, do not produce healthy bone marrow, so they don’t produce healthy blood. Untreated, this genetic disease can cause leukemia. Maelin’s was caught early. She was referred to St. Jude Children’s Research Hospital® for chemotherapy and abone marrow transplant. Quickly, her care team came to feel like family. “She knew her doctors and nurses loved her. She knew that they wanted the best for her. It was a bittersweet day when we left the [transplant] floor, for both of us, because we were so close to our nurses, and they were so close to us.” Today, Maelin is doing great. A pint-size princess with “glitter in her veins,” she is the youngest and only girl in a family of five children. “She’s just super joyful,” said her mom. “Every day, she finds a reason why it’s the best day ever. She’ll say, ‘I see a butterfly—it’s the best day ever.’ Or, ‘We ate spaghetti for dinner —it’s the best day ever.’ She makes everybody smile every day, because she loves everything about life.”